Extra, Extra!! Read All About It!

So I've finally gotten the courage to spread the news that I will be running in the Disney Princess Half Marathon on March 7th to raise funds and awareness for Omegaven. So for the next 5 months I will be relentlessly training for the race and, more importantly, raising money for Omegaven Research so more babies can get the treatment they need for short gut syndrome and so families can rest in knowing that their child is on their way to recovery!

My goal is $25,000! But passing this goal would be a true blessing. You see, families receiving Omegaven do not pay for the treatment. Because it is a research project the lipid is provided to the family at no cost. The only difficulty is getting the families to a hospital that uses Omegaven, which is a small handful throughout the United States. (Will provide that list soon!) So funds donated specifically to the Omegaven research may enable the research team to treat more patients and encourage more hospitals to use Omegaven at their facilities. If more hospitals use Omegaven, more children and their families will have access to the lipid, and more lives will be saved. I am sure of this!

So to jumpstart this fundraising I will be sending out newsletters monthly to provide facts and tidbits about Omegaven, where we are in our fundraising, and names of those who have donated. If you would like to receive this newsletter please just e-mail me with your mailing address or e-mail address at sherbearsis7@earthlink.net. Please type "newsletter" in the subject line so I don't delete the e-mail as junk mail!

I do plan on having different fundraising events and activities in the near future as well!! If you would like to help in anyway please e-mail me at the address above with "fundraising help" in the subject line.

It is about time the world hear about this lipid that can save the lives of kids struggling with short gut syndrome. It saved my son's life. It has saved over 100 kids who have received the treatment at Children's Hospital Boston. There is no reason this number shouldn't be in the thousands. Let's put pressure on other hospitals to provide this treatment. The last thing a family needs to worry about for their child with short gut syndrome is if their liver will survive. Omegaven can do that!!!!! No more excuses!!!!

It's out!

So the mic-key button came out with no problem yesterday. And we even haven't had any leaks!!!

What was really cute was when Chase said "I did it!" while we were walking out of the doc's office yesterday. We're so proud of our little fighter and apparently so is he!!!