This is all the "stuff" I had to mix, inject, disinfect, prep, connect, and program. All while being as sterile as possible. The "stuff" in the top left corner is the tubing for and the bottle of Omegaven (or what we like to call white gold!). The bottom left is his bag of TPN and the vitamins that had to be injected into it. In the top right is the alcohol swabs used when touching ANYTHING and the flushes used to flush his line before hooking him up. And the bottom right is the pump that all this was run through, batteries for the pump, and tubing for the TPN.
This is a close-up of the TPN bag
Drum roll please.................
This is a bottle of Omegaven!
Any parents out there thinking about going to Boston for this stuff.....
here it is. Just a small bottle containing a whole lot of miracle!!
This is his pump pole. It has his Omegaven pump(notice the Nemo sticker. Fish oil...Nemo...get it? Just a little reminder from our CAIR team), TPN pump, and his enteral feeding pump all loaded up on it. And that square "thing" behind it is actually the co-sleeper that he use to sleep in right next to our bed. The big bag of white fluids is the Neocate formula that we use to run through his mic-key button at night. a.k.a. his food.
Drum roll please.................
This is a bottle of Omegaven!
Any parents out there thinking about going to Boston for this stuff.....
here it is. Just a small bottle containing a whole lot of miracle!!
This is his pump pole. It has his Omegaven pump(notice the Nemo sticker. Fish oil...Nemo...get it? Just a little reminder from our CAIR team), TPN pump, and his enteral feeding pump all loaded up on it. And that square "thing" behind it is actually the co-sleeper that he use to sleep in right next to our bed. The big bag of white fluids is the Neocate formula that we use to run through his mic-key button at night. a.k.a. his food.
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And this is Chase tonight!! Sleeping in his own room, in his own crib with NO POLE!!
Absolutely amazing!!!! Praising GOD for this miracle.....
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