Back from Boston!!
All is well!!! Chase is 17 lbs. 10 oz. and 26.8 in. long. All of his doctors and nurses were so excited to see him. And of course, he put on quite a show for them: giggling, smiling, jumping, babbling, and all those little charming things he does that just makes our hearts melt.
They reduced his TPN volume from 500ml/night to 300ml/night!!! That is a drastic drop, but we are praying and hoping for the best. As long as he continues to gain weight, we're all good. 300ml/night is the lowest amount they will go before they start to cut back on the number of nights he is on TPN. Right now he is on TPN every night for 12 hours. If his weight continues to go up, the next time we go to Boston in May, they will most likely cut back on the number of nights. From there, it's just a matter of time before he is off of TPN all together. All in all, our little fighter (with the help and guidance of our Heavenly Father) is KICKIN' SHORT GUT'S BUTT!!! Wahoooooooo!!!!!!!!!!!!
We also got the OK to move to Stage 2 baby food, table foods like mashed potatoes, teething biscuits, and a sippy cup. We are also hoping that cutting back on the TPN will really increase his appetite so we can reach the 24 oz/day goal. We may even be able to switch to regular formula when he turns 1 yr. old. That's in 4 months, can you believe it?!?!?!?!
Chase has a lot of audiology appointments in the next month for his hearing, but we are confident that God has already taken care of that. He is responding to sounds, voices, and even whispers AND he has started babbling: dadadada, mamamama, babababa, and bububububu. Music to our ears!!!!!!!!!!
Prayers are always welcome and appreciated. When the end seems to be in sight, we forget to talk to the man upstairs, the one who is the reason our son is here in the first place. I have to remind myself of this often. Gotta give credit where credit is due, and He definitely deserves ALL the praise and glory for how far our little frog has come.
That is all such great news! Keep on kickin short gut butt!!!
ReplyDeleteAbby and Ellie Brogan